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Dear Friend,

June Hotsheet copy.jpgI hope you have a chance to read the June 2013 HotSheet. I am so pleased that Rick Lyke and Pints for Prostates is a special sponsor for this June and our upcoming September issue. Rick is a true friend and valuable collaborator of Us TOO, as well as a former Us TOO Board member. He has a message I want to include here and we will be posting on our website:

Pints for Prostates: Reaching Men Through the Universal Language of Beer

Pints for Prostates embraces the mission of the Us TOO International Prostate Cancer Education and Support Network, and is proud to underwrite the costs of this issue of theHotSheet.

Pints for prostates.pngFounded in 2008 by a prostate cancer survivor, Pints for Prostates hosts events around the country to encourage men to take charge of their health and help them to understand the importance of early diagnosis in fighting prostate cancer. Pints for Prostates is a registered 501(c)3 non-profit organization that operates with grassroots volunteer support. We invite you to volunteer or just stop by our booth at an upcoming event.

Here is a partial list of upcoming Pints for Prostates events. For more events, visit www.pintsforprostates.org or follow them at www.facebook.com/pints4prostates.

June:
June 12, 6-9 p.m.: Pike Place & Brewery, Seattle, Wash. June 13, 6-8 p.m.: Pyramid Alehouse in Walnut Creek, Calif., with Diablo Valley Oncology and Pacific Urology. 

July:
July 3/July10/July 17/July 24: Flying Saucer Draught Emporiums in Texas, Arkansas, Missouri, Tennessee, South Carolina and North Carolina host awareness events. Keep the glass and get a chance to win a beer vacation for 2 to Europe. 

August:
Aug. 24 Noon-6 p.m.: Midwest Brewers Fest in Plainfield, Ill. Aug. 24 3-7 p.m.: Macon Beer Festival in Macon, Ga.

September:
Sept. 12-22: European Beer Adventure, 9 nights in Amsterdam, Brussels, Cologne and Dusseldorf visiting classic breweries and beer halls. Visit www.beertrips.com for more information. 

October: 
Oct. 10-12: Great American Beer Festival in Denver, Co. Oct. 11 1-4 p.m.: Denver Rare Beer Tasting in Denver, Co. Tickets on sale June 16 at www.pintsforprostates.org.

The FDA approved Bayer’s Alpharain or radium 223, now called Xofigo shortly after this issue of the HotSheet was completed. This approval took place a bit sooner than anticipated, and it is great news. Once we saw the Press Release, we placed information on our Us TOO website.

Jan Manarite, who I mentioned last month recently lost her husband to his prostate cancer, has produced an easy to understand article on Xofigo. Jan is a valuable contact and a collaborator on the Prostate Cancer Early/Expanded Access Committee.

As a reminder, Living With Prostate Cancer Workshop Part III brought to you by CancerCare is scheduled for June 11th titled “For Caregivers: Coping with a Loved One’s Metastatic Prostate Cancer”. You may have also noticed on our website their new Prostate Cancer On-line Support Group which starts June 3rd and runs through September 15th.

The new AUA Guidelines released during their early May conference has resulted in much discussion. We have placed several of their Guidelines on the cover page of the HotSheet and on our website.

There has been strong discussion on their screening Guideline and the Prostate Cancer Roundtable has issued a new Press Release on the matter. Look for that as well on our website. There certainly is reason for us to stay on top of these dramatic developments in prostate cancer. We have a right to be concerned about the confusion many are facing about screening and there is more need than ever before for us to be informed and active.

The Department of Defense Prostate Cancer Research Program is seeking volunteers to serve as Consumer Reviewers. The deadline for submission is Friday, May 31st, and you can find more information on both the Us TOO and Department of Defense website.

Applicants must be a survivor of prostate cancer, an active participant in a prostate cancer-related organization, able to read and write in English, have a high school graduate or equivalent, able to demonstrate interest in extending your personal scientific knowledge, and have ready access to a computer with an Internet connection.

Applicants will also need a letter of support from an advocacy organization such as Us TOO. Please let me know if I can help provide one for you. Find the application and more information here. If you are interested in moving forward with this, please contact me by email at tom@ustoo.org or the Us TOO office by calling 1-630-795-1002. We will need to complete the Nomination Form together as Section II requires information from you.

Finally, be aware that progress is being made for awareness events such as the “Shop For Your Man” fashion event scheduled for June 22nd in Austin, TX and the 9th Annual SEA Blue Walk & Run set for Chicago’s Lincoln Park on September 15th.

My best,


Thomas Kirk
President & CEO
Us TOO International
Downers Grove, IL 60655
Office: 630-795-1002
Toll Free: 800-808-7866
tom@ustoo.org

Tom Kirk

 
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