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Dear
Friend,

As November approaches, we’re pleased to distribute the latest issue of the HotSheet (CLICK HERE). 

And while September and prostate cancer awareness month are still not-too-distant memories, we’d like to extend our sincere thanks and appreciation to a few more volunteers who took it upon themselves last month to develop and manage independent events to generate donations to help fund the work of Us TOO:

* Michelle Radke, Us TOO support group leader in Stevens Point, WI, hosted the 3rd Annual Pints for Prostates event on September 20th.
* Brittany LaDuke orchestrated a flair bartending competition at Slingers Bar & Grill in Livonia, MI (think Tom Cruise in the movie, “Cocktail”).
* Marla Zimmerman with Prostate On-Site Project rallied walkers for the cause in Tempe, AZ, on September 27th.

I wrapped up last month participating in a satellite media tour on September 30th with Jeff Albaugh, PhD, APRN. He and I spoke with 25 television and radio stations from across the country to help raise awareness of prostate cancer and its treatment options and side effects, along with the services provided by Us TOO to the prostate cancer community.

Thanks again to SEA Blue Prostate Cancer Chicago Walk & Run participants, donors and sponsors. The event has raised more than $114K (in addition to corporate sponsorships). Funds are still coming in and donations will be accepted until October 31st. If you would like to donate, please CLICK HERE.

I was in Washington, DC, for the National Alliance of State Prostate Cancer Coalition (NASPC) meeting on October 11th and 12th. The event served as a valuable opportunity to reconnect with many old friends, advocates and chapter leaders all seeking greater alignment on prostate cancer education and support initiatives.

We’re in the process of finalizing materials for our upcoming “Thanks and Giving” holiday fundraising campaign. A professionally designed and printed holiday greeting card, an e-card, and a series of emails during November and December will provide multiple opportunities for donors to contribute in recognition of the value that Us TOO delivers to the prostate cancer community with educational initiatives and support services provided at no cost.

Plan to join Us TOO and ZERO on Monday, November 3rd, from 4:00 to 5:00 pm EDT for the “Prostate Cancer and Bone Health” educational webinar, which will address bone-related complications resulting from prostate cancer. For more information and to register CLICK HERE.  

We’re looking forward to hosting the Us TOO Regional Leadership Town Hall Meeting in Sarasota, FL, on November 20th.  These regional meetings are sponsored by Sanofi, TEVA, and Dendreon. This event will address advancing collaboration among chapters, support groups and the Us TOO home office as we welcome former ACS Man to Man support groups into the Us TOO network and map the plan for growing the Us TOO Southeast Region chapter and affiliated support groups.
Us TOO 25th

Us TOO will be celebrating our 25th anniversary in 2015!
Mark your calendar for an Us TOO milestone event in Chicago on April 24th and 25th. Stay tuned for more details. 

Our email on October 10th noted prior communication from Bayer HealthCare to proactively inform the prostate cancer community about the temporary supply disruption of Xofigo® (radium Ra 223 dichloride), which was recently approved by the FDA as treatment for men with castrate resistant metastatic prostate cancer (CRPC) with bone metastases without any known visceral metastases. This week Bayer posted updated information about product supply at www.xofigo.com.

PROSPER, a phase 3 clinical research trial
, is currently seeking participants to determine the effects of enzalutamide (an oral investigational drug) added to standard therapy compared to standard therapy alone in men whose prostate cancer has gotten worse despite treatment with hormonal therapy.  For more information visit CLICK HERE

We are saddened to learn of the passing of Winston Dyer, who was a very active Us TOO volunteer in Brooklyn.  After leading a vibrant Us TOO support group for a number of years, he purchased a bus to provide free screening in African American neighborhoods.  We extend our condolences to family and friends and invite you to visit his Facebook page (CLICK HERE). 

Cancer Support Community (CSC) is conducting an online survey about access to care. They would like to hear from people impacted by cancer and their experiences in regard to changes to insurance coverage and the perceived value in cancer care. CLICK HERE for the survey.

The European Prostate Cancer Coalition has issued their latest newsletter. To access the content CLICK HERE

Beverly Bishop, a University of Massachusetts Amherst College of Nursing PhD student, is doing a research study to understand preparatory grief as it relates to advance care planning for patients with advancing prostate cancer. To participate in the survey CLICK HERE

The Department of Defense Congressionally Directed Medical Research Programs website features an article about the positive approach to managing life with prostate cancer and volunteering as demonstrated by Willy Staten, a member of the Us TOO support group in San Antonio, TX (CLICK HERE). “We can complain because rose bushes have thorns or rejoice because thorn bushes have roses," advises Willie.

Finally, as your attention turns to holiday shopping with online purchases, remember to participate in the Amazon Smile program. Simply designate Us TOO International as your charity of choice and 0.5 percent of the value of all purchases will be donated to Us TOO. There’s no limit to the amount Amazon Smile will donate. Help spread the word to shop and help Us TOO.

My best to you,

Thomas Kirk
President & CEO
Us TOO International
Des Plaines, IL 60018
Office: 630-795-1002
Toll Free: 800-808-7866
tom@ustoo.org
Tom Kirk 14
 
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